Graded Exercise Therapy for ME/CFS – A Personal Experience I’m standing in the middle of a sports shop for the first time in years, trying on running trainers. Because I am nothing if not predictable when it comes to shoe taste and fashion, I reach across and pick up a pair of black and rainbow… More My Doctor’s ME/CFS “Solution” and What Happened Part 2
Come with me on a trip to the ME/CFS specialist in the UK back in 2016. I’m back in the UK for a doctor’s appointment. If I have access to two healthcare systems, I am sure as hell going to make the most of both of them. So far, about two years into experiencing full-time… More My Doctor’s ME/CFS “Solution” and What Happened Part 1
Chronic Epstein Barr Virus, Systemic Exertion Intolerance Disease, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis. What do all of these have in common? In fact, they are all names for the same illness. But why does one illness have so many different names? And why does the name of the illness matter? Well, like almost every other… More ME/CFS; a disease with many names
A couple of nights ago, just before I was about to go to bed, I started getting a creeping uneasy feeling, that turned into a fully-fledged paranoia that I was going to get thrombosis, have a blood clot, and then a stroke. It was something that I then spent the next couple of hours obssessing… More Health anxiety – I’m terrified of getting sick
‘Chronic Fatigue Syndrome sufferers “can overcome symptoms of ME with positive thinking and exercise.”’ I’m sure we have all seen these headlines. A remarkable discovery: yuppie flu is exactly that; it’s not a real chronic illness – it’s just in people’s heads. Despite the fact that almost every case of CFS/ME (Chronic fatigue syndrome/myalgic encephalomyelitis)… More Off the PACE – scientific malpractice and chronic fatigue syndrome