Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a mysterious illness to many people. They’ve either never heard of it or heard misinformation about it. That means when you tell somebody new about your illness, you have to explain a lot. Something I’ve never really got the hang of. I either explain too much or too little;… More Five Things You Need to Know About ME/CFS
Come with me on a trip to the ME/CFS specialist in the UK back in 2016. I’m back in the UK for a doctor’s appointment. If I have access to two healthcare systems, I am sure as hell going to make the most of both of them. So far, about two years into experiencing full-time… More My Doctor’s ME/CFS “Solution” and What Happened Part 1
By summer this year the number of people with Myalgic Encephalomyelitis (ME) is expected to have at least doubled since the beginning of the pandemic due to the huge numbers of people developing ME from covid. So funding and support for people with ME, and money going towards ME research is more necessary than ever. ME… More 4 Things That You Can Do for ME Awareness Month
Dear ME, Its been more or less eight years that I’ve spent with you and honestly I still don’t know how I feel about you. At all. I want to say you’ve taken my life away, made me live a half life, and doomed me to rot away in bed. But that’s really only partially… More Dear ME: a letter to my chronic illness
Chronic Epstein Barr Virus, Systemic Exertion Intolerance Disease, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis. What do all of these have in common? In fact, they are all names for the same illness. But why does one illness have so many different names? And why does the name of the illness matter? Well, like almost every other… More ME/CFS; a disease with many names