Graded Exercise Therapy for ME/CFS – A Personal Experience I’m standing in the middle of a sports shop for the first time in years, trying on running trainers. Because I am nothing if not predictable when it comes to shoe taste and fashion, I reach across and pick up a pair of black and rainbow… More My Doctor’s ME/CFS “Solution” and What Happened Part 2
TW: suicide, death, euthanasia Recently I found out that in the Netherlands (and actually some other countries) you can get euthanasia if you have ME. My illness. Since finding this out it has been something I have thought about a lot. There is something kind of strange about finding out that living with my illness… More Euthanasia, suicide and ME/CFS
A couple of months ago I went to a demonstration for the first time since the pandemic started. This demo (by transzorgnu) was organised as the start of a movement to fight against the state of transgender healthcare in the Netherlands. Throughout the many speeches and social media content surrounding the demonstration, I was constantly struck… More Healthcare, ableism and transphobia
I recently asked my good friend Alicia Shearsby to write about her experience of being fat and disabled. I remember very clearly the first time I was confronted with the different treatment that fat and thin people get when Alicia and I went to the doctors together. We were travelling and both had the same… More Fatphobia is a Disability Justice Issue: A personal experience of being fat and disabled in the UK
On the way home from my weekly work shift, when I was still well enough to work, I was always exhausted – and often shaking and sweating. I would take the metro, on a very busy line, and would often end up standing the entire way home, despite knowing that I might pass out at… More Do we need more invisible disability awareness?
When looking through my bookshelves recently, I realised that I had read very few books about people with disabilities, and even less about people with chronic illnesses. I grew up reading books like What Katy Did, and The Secret Garden, where chronic illness is usually treated euphemistically or else there is a miracle cure –… More Chronic illness book recommendations
The Corona virus has been on the loose for seven months now and, in that time, has infected millions of people. Throughout the pandemic, certain key statistics have been reported, around the numbers of deaths and the numbers of recoveries. However, these statistics miss out a large group of people, who after months of having… More Post Corona illness and medical gaslighting