Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a mysterious illness to many people. They’ve either never heard of it or heard misinformation about it. That means when you tell somebody new about your illness, you have to explain a lot. Something I’ve never really got the hang of. I either explain too much or too little;… More Five Things You Need to Know About ME/CFS
Come with me on a trip to the ME/CFS specialist in the UK back in 2016. I’m back in the UK for a doctor’s appointment. If I have access to two healthcare systems, I am sure as hell going to make the most of both of them. So far, about two years into experiencing full-time… More My Doctor’s ME/CFS “Solution” and What Happened Part 1
This week is Lesbian Visibility Week, and honestly, it feels like a pertinent time to be talking about LGBTQ+ representation and visibility. After a period of relative increase, we were finally beginning to see LGBTQ+ characters represented in the mainstream. In 2026, this is beginning to recede again. LGBTQ+ stories are being pushed back out… More The Hidden Decline of LGBTQ+ Representation Happening Now
It’s no secret to anyone reading my blog that I’ve lived abroad for a long time. My entire adult life, to be specific. But last year I ended up moving even further away. I now spend a lot of my time in Malaysia. Many people ask me: “Why Malaysia?” While there is no one main… More My Chronic Illness Helped Me Move Abroad and I Love It
“After you told us about your health, we fear that this course would be too much for your body. For that reason, we are unable to give you a spot on the course at this moment”. This is a quote from a longer email I received last week. It was seemingly rejecting me from a… More Disabled People are the Experts on Our Bodies
It’s a Saturday night, I’m 22 and I am sitting on the back of a friend’s bike, whizzing through the centre of Amsterdam. I’m in a big group of friends and we all have cans of beer in our hands. BVOtjes as the Dutch call them. A ´Bier voor Onderweg´ (a beer for on the… More Kat’s Annual ‘I Am Still Young’ Night Out
A couple of weeks ago, I was asked to tell a story at one of the Amsterdam storytelling locations, the Mezrab. The topic of the story was supposed to be about miracles. Now it is no secret to those who know me that I have been struggling recently. I am now five weeks into a… More Little Glimmers of Hope in an ME/CFS Crash
As a stand-up comedian and improviser attending the Edinburgh Fringe Festival is a right of passage. So, after about a year of stand-up, I attended my first-ever Edinburgh Fringe Festival, and it was quite something. And by that, I mean really awesome! With over 3 million people visiting Edinburgh in just one month and almost… More First Time at The Edinburgh Fringe Festival
ME/CFS maths goes something like, “one week of careful fun equals at least one month of housebound rest”. At least, that is the case in my life when the careful fun is not quite careful enough. I am currently paying what I like to call the “fun tax”. This is the time I spend crashing… More It’s Fun Tax Time Babyyyy!
Since starting to relapse, I have had to cancel many different events and pull out of various jobs I was doing. People have been lovely and understanding which I am very grateful for. However, they keep on telling me to “Get Well Soon”. My biggest pet peeve. And while it is 100% said out of care and love, it… More Please Stop Saying ‘Get Well Soon’!