One of the biggest problems facing ME/CFS is the lack of research going into it. At the moment, there is no cure. And any possibility of a cure is far into the future. But it is still something that I want and dream about. However, in discussions about Disability Pride, it sometimes seems that, in… More Can I have Disability Pride yet still want a cure for my illness?
One of the first questions you get asked when you are getting to know new people is “so what do you do?” If you have a chronic illness and, like me, are unable to do very much, this becomes a very difficult question to answer. Our self-identity is very often made up of the things… More Chronic illness and the loss of identity
Does my chronic illness make a me a burden in my relationship? In a recent New York Times advice article, a reader sent in the question, “Is it okay to dump him because he has a medical condition?” And the answer given was that yes, this is okay. In fact, they said, if you are… More Chronically ill people are not a burden in a relationship
Since 1st June, a considerable number of countries in Europe have been loosening their regulations around the corona virus. Lock down is ending! I have heard friends planning holidays within Europe, and seen pictures on social media of people drinking wine on the terraces. But not for me. As I mentioned before, since the beginning of… More Corona lock down is ending, but not for me…
‘Chronic Fatigue Syndrome sufferers “can overcome symptoms of ME with positive thinking and exercise.”’ I’m sure we have all seen these headlines. A remarkable discovery: yuppie flu is exactly that; it’s not a real chronic illness – it’s just in people’s heads. Despite the fact that almost every case of CFS/ME (Chronic fatigue syndrome/myalgic encephalomyelitis)… More Off the PACE – scientific malpractice and chronic fatigue syndrome
Three months of lock down, and many people have really struggled, being stuck inside, not seeing friends and family, and generally having no exciting plans for the future. Not to mention, job and financial insecurity, lack of access to necessities, and the plethora of other negative effects the corona virus has caused people. It’s a hard time for many people. But… More Living my best life – social distancing edition
In the last couple of days, in light of so much thought and discussion about illness, I have been reflecting on the period of time when I first became ill with chronic fatigue syndrome. And I can’t get rid of the lingering feeling that, in the next few years, as corona virus continues to spread… More I’m sick and at first I didn’t know