This year has been a big year, in a lot of ways. It’s been very difficult, think corona, and I have also had more than my fair share of rubbish this year. But I have also had a lot of realisations and grown a lot this year, and in that way it has been very… More Coming out as queer the year I married a man
I spent this morning talking through my finances with my partner. And it’s not pretty. Having a chronic illness is incredibly expensive – and having a chronic illness that stops you from being able to work doesn’t really help matters. Whilst there are some available safety nets to help those who are unable to work,… More Money, money, money – chronic illness is expensive!
TW Aids, Death:I read The Great Believers by Rebecca Makkai recently and decided that I needed to review it. Today is World Aids Awareness day so seemed like the perfect time to discuss a novel set in the gay scene whilst the AIDS epidemic was on the rise. At the beginning of this novel we… More The Great Believers by Rebecca Makkai
This post includes ModiBodi affiliate links. I will earn from any qualifying purchases made through these links. I don’t like my period… never have and I doubt I ever will. I have a friend who once told me they liked their period because it made them feel more connected to their body every month. I… More I tried period pants and they are amazing
“There is something about everything that you can be glad about, if you keep hunting long enough to find it.” ― Eleanor H. Porter, Pollyanna Believe it or not, in many ways I am very thankful for having an illness. Don’t get me wrong, I feel I’ve learnt my lessons now and would certainly not… More Playing the glad game with a chronic illness
In the Netherlands, there seems to be this idea that self-isolating and following precautions and corona regulations is an individual choice. This isn’t such a surprise, when you look at the Netherlands and see how hyper-individualised everything is, but when it comes to responding to a pandemic, it is not such a successful perspective. And… More Ignoring corona risk: privilege or empowering choice?
Today’s post is written by fellow blogger, and an online chronic illness friend of mine, Liv Hamil. I’ve been following Liv’s blog for a while now and love it. We decided it would be fun to write a post for each others blogs. So, as both of us spend a lot of time on social… More Writing my way out of my bedroom
I became sick in January 2015, or potentially earlier if I look back over my health records from the years before that. I did not receive an official diagnosis until September 2018. That is almost four years later. This is by no means unusual – in fact, some would consider it a very quick diagnosis… More A diagnosis is an important part of dealing with disability
When looking through my bookshelves recently, I realised that I had read very few books about people with disabilities, and even less about people with chronic illnesses. I grew up reading books like What Katy Did, and The Secret Garden, where chronic illness is usually treated euphemistically or else there is a miracle cure –… More Chronic illness book recommendations
My fitness level, last time I got it checked, was that of an unfit 69-year-old. How do I know? When I was getting my ME diagnosis, I was hooked up to an exercise bike and a lot of different machines measuring different things. After analysing this data, it was compared to an ‘unfit average’ for… More Living with ME and POTS – my physical symptoms