I spent this morning talking through my finances with my partner. And it’s not pretty. Having a chronic illness is incredibly expensive – and having a chronic illness that stops you from being able to work doesn’t really help matters. Whilst there are some available safety nets to help those who are unable to work,… More Money, money, money – chronic illness is expensive!
When looking through my bookshelves recently, I realised that I had read very few books about people with disabilities, and even less about people with chronic illnesses. I grew up reading books like What Katy Did, and The Secret Garden, where chronic illness is usually treated euphemistically or else there is a miracle cure –… More Chronic illness book recommendations
Humans live in communities. We live in villages, towns and cities, and we see our family, friends and colleagues regularly. Humans live together. Yet despite this, there is a drive for us to be independent, to provide for ourselves financially and look after ourselves by ourselves. We are considered to have made it if we are… More The myth of independence: is it harmful?
A while back I texted my mum at 22:00 to see if she would be interested in writing a short something about having a child with a chronic illness. The next morning I woke up and mum had already sent me this article! I had to take some of the excessive praise out, but besides… More Dealing with chronic illness: a mum’s perspective
Does my chronic illness make a me a burden in my relationship? In a recent New York Times advice article, a reader sent in the question, “Is it okay to dump him because he has a medical condition?” And the answer given was that yes, this is okay. In fact, they said, if you are… More Chronically ill people are not a burden in a relationship