Video version at the bottom of the page – coming soon! Last night I was too sick to get out of bed. I had managed to put some pasta on to boil but had then gone straight back to bed. My housemate, rescuing the pasta from being overcooked, came into my room and offered to… More Asking for help is hard: chronic illness edition
I started using a wheelchair around about a year ago. Since then, I haven’t really been able to use it all that much, other than for trips to the supermarket and walks in the nearby area. But recently, thanks to living in the EU and being fully vaccinated, I was able to take myself and… More My first time travelling with a wheelchair
Chronic Epstein Barr Virus, Systemic Exertion Intolerance Disease, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis. What do all of these have in common? In fact, they are all names for the same illness. But why does one illness have so many different names? And why does the name of the illness matter? Well, like almost every other… More ME/CFS; a disease with many names
A couple of nights ago, just before I was about to go to bed, I started getting a creeping uneasy feeling, that turned into a fully-fledged paranoia that I was going to get thrombosis, have a blood clot, and then a stroke. It was something that I then spent the next couple of hours obssessing… More Health anxiety – I’m terrified of getting sick
I don’t really believe in laziness. At least, not when the term is used around me, or when I use it myself. It’s not really even used to mean laziness, but rather a plethora of other, very different things, often in the form of unseen barriers. I know that when I call myself lazy, usually… More But are you REALLY lazy?
It’s my birthday on Thursday. I am turning 26. I am a really big fan of birthdays, and love making other people’s birthdays special, but when it comes to mine, I have mixed feelings. Chronically ill birthday’s are a little different. Don’t get me wrong, I’m looking forward to having cake, and having something to… More Chronically ill birthday reflections
I spent this morning talking through my finances with my partner. And it’s not pretty. Having a chronic illness is incredibly expensive – and having a chronic illness that stops you from being able to work doesn’t really help matters. Whilst there are some available safety nets to help those who are unable to work,… More Money, money, money – chronic illness is expensive!
I was actually midway through writing a different, but very closely connected, blog post (of which I will post an edited version very soon), when I saw the following news, and felt I had to write down my emotional response to that, instead. Sadly, the main takeaway from the original post had been my fear… More Long-covid and ME: what’s in a name?
Today’s post is written by fellow blogger, and an online chronic illness friend of mine, Liv Hamil. I’ve been following Liv’s blog for a while now and love it. We decided it would be fun to write a post for each others blogs. So, as both of us spend a lot of time on social… More Writing my way out of my bedroom
I became sick in January 2015, or potentially earlier if I look back over my health records from the years before that. I did not receive an official diagnosis until September 2018. That is almost four years later. This is by no means unusual – in fact, some would consider it a very quick diagnosis… More A diagnosis is an important part of dealing with disability