Dear ME, Its been more or less eight years that I’ve spent with you and honestly I still don’t know how I feel about you. At all. I want to say you’ve taken my life away, made me live a half life, and doomed me to rot away in bed. But that’s really only partially… More Dear ME: a letter to my chronic illness
I decided to stay a little longer in St Helena whilst I was out there, so I spent several days rearranging my travel plans, which seemed like an opportune time to write this post. Having been lucky enough to travel quite a lot, both long and short haul, whilst being various stages of sick, I… More 7 tips for travelling whilst sick
A couple of weeks ago, when I was still in St Helena, I climbed what I am considering a mountain. Sure we drove halfway up and walked the rest, but even so, I climbed way further than I have climbed in the last few years. Even two months ago, walking to the supermarket sent me… More My health is improving… finally!
Many people do not have very much experience interacting with or being friends with wheelchair users and so might not know some of the basic rules of what I am going to call wheelchair etiquette. Whilst a lot of this is common sense, it still seems to need to be said, as I have experienced… More Seven rules of wheelchair etiquette
About three weeks ago my good friend, and fellow disabled person, Alicia Shearsby, contacted me and asked if I wanted to be involved in a project with her. As a sensible person, who knows when they have too much going on, I obviously said yes despite being very busy. For the next week we both… More Branwen and the Hare Moon
I don’t think I ever really understood how detrimental loneliness and isolation can be, until I got ME/CFS and POTs. Being chronically ill can be an incredibly isolating and lonely experience, and it can feel as if there is nothing you can do about it; as if for as long as you are sick, you… More Chronically ill and isolated
Care giving relationships (particularly unpaid) when caring for disabled people can be difficult to manage for both people in the relationship. For the disabled care receiver it requires a trust and a vulnerability to allow yourself to receive care, and for the care giver it can feel as if you have too much responsibility. Having… More Care giving relationships can be tricky
After years of knowing that a wheelchair would be helpful but being too scared to use one, exactly one year ago I bought my first manual wheelchair. So, on my wheelchair anniversary this year, I want to challenge one of the most common things that people are told when they start thinking about mobility aids,… More Using a mobility aid is not giving up
TW: suicide, death, euthanasia Recently I found out that in the Netherlands (and actually some other countries) you can get euthanasia if you have ME. My illness. Since finding this out it has been something I have thought about a lot. There is something kind of strange about finding out that living with my illness… More Euthanasia, suicide and ME/CFS
Learning a new language is quite a daunting prospect for anybody. Add in a chronic illness, with fun symptoms like brain fog, energy deficiency problems and memory recall issues, and it can seem very overwhelming. I am currently spending a lot of my time learning Dutch, in order to pass exams at the end of… More Language learning with a chronic illness