Today’s post is a guest post from blogger Pippa Stacey. She has written an incredibly useful guide to university for chronically ill people – something I wish I had read whilst I was studying. Unfortunately due to Corona a lot of Pippa’s book launch had to be cancelled. So lets try and make this book… More Pursuing Education, University and Employment with a Chronic Illness
Humans live in communities. We live in villages, towns and cities, and we see our family, friends and colleagues regularly. Humans live together. Yet despite this, there is a drive for us to be independent, to provide for ourselves financially and look after ourselves by ourselves. We are considered to have made it if we are… More The myth of independence: is it harmful?
A guest post by a fellow chronic illness creator Casey who can be found here. Today‘s blog takeover is a by fellow chronic illness instagrammer and blogger who writes a lot about fibromyalgia. She has been running a campaign on instagram to showcase the person behind the chronic illness instagram account and I asked her… More Guest Post: A Chronic Illness Project
Recently, I was skyping some friends and one of them mentioned they were picking up a brand new, 2020 plate car. After sharing the required excitement, I told them about my new and exciting vehicle: a wheelchair! A few days later, in another skype call, someone started a discussion by saying “now that we all… More The Peter Pan effect and chronic illness
A while back I texted my mum at 22:00 to see if she would be interested in writing a short something about having a child with a chronic illness. The next morning I woke up and mum had already sent me this article! I had to take some of the excessive praise out, but besides… More Dealing with chronic illness: a mum’s perspective
Chronic illness is hidden. I guess they call it an invisible illness for a reason, and whilst it isn’t entirely accurate to say my illness is entirely invisible, at a glance I do seem like a healthy young woman. If you knew me better, you might see the huge bags under my eyes, the slightly… More Coming out as disabled
One of the biggest problems facing ME/CFS is the lack of research going into it. At the moment, there is no cure. And any possibility of a cure is far into the future. But it is still something that I want and dream about. However, in discussions about Disability Pride, it sometimes seems that, in… More Can I have Disability Pride yet still want a cure for my illness?
Did you know that July is Disability Pride month? To be honest with you, I didn’t know for a long time. In fact, I only discovered it last year, and really only engaged with it this year. But what is Disability Pride? And what is there to be proud about when you are disabled? These… More Disability Pride: an introduction
One of the first questions you get asked when you are getting to know new people is “so what do you do?” If you have a chronic illness and, like me, are unable to do very much, this becomes a very difficult question to answer. Our self-identity is very often made up of the things… More Chronic illness and the loss of identity
The Corona virus has been on the loose for seven months now and, in that time, has infected millions of people. Throughout the pandemic, certain key statistics have been reported, around the numbers of deaths and the numbers of recoveries. However, these statistics miss out a large group of people, who after months of having… More Post Corona illness and medical gaslighting